FOLLOWUP: Man Who Went Blind Is Heading To Miami For Therapy June 12th


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Although he's legally blind, Brian Aston still plays pool. Here he is at the April 29th fundraiser at Goodtime Ernie's in Burien. Photo courtesy D. Banks Photography: http://dbanksphotography.smugmug.com

Brian Aston, the young man who went blind at age 20 (read our previous coverage here), will be leaving June 12th for a gene therapy study in Miami using money raised at an April 29th benefit at Burien’s Goodtime Ernie’s.

Aston, a graduate of Highline High School, was diagnosed with a disease called Leber’s Hereditary Optic Neuropathy, which left him with no central vision, as well as limited peripheral vision with color abnormalities. In the past seven years there has been no hope of a cure or even research on this rare disease.

He’s using part of the over $4,000 raised at the April 29th fundraiser to participate in this cutting-edge gene therapy study at the Bascom Palmer Eye Institute.

“This study shows great progress towards the treatment and cure for not only LHON by also other mitochondrial disorders such as Alzheimer’s, Huntington’s and Parkinson’s,” said Brian.

Aston will return June 17th, and here’s an update from his Facebook Page:

“Miami ill c u on my birthday baby!! i leave june 12th and come back on the 17th! Gene therapy study here I come!! i cant beliece only 3 months ago I basically knew jack about my disease now im starting a path of vitamin therapy and Idebenone treatment and on my way to Miami to join a study that may end up simply being a damn CurE! unbelieveible! DTC!”

We’d like to send our best wishes and most positive, healing and helpful thoughts to this young man, and we hope he finds much success in this cutting edge new treatment!

Here are some relevant links:

  • Brian’s online fundraising page is here, and donations are still being accepted through Paypal.
  • LHON Website Brian created is here.
  • Brian’s 4/29 Fundraiser Event Page is here.
  • KING-5’s news coverage of Brian’s story is here.
  • Christy Aston-Rose, Brian’s mom’s Facebook page is here.
  • Brian Aston Facebook page is here.
  • Good Time Ernies Facebook page is here.

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