Burien Family Will ‘Pay It Forward’ for Cassidy Huff at Walk For Wishes Sept. 23
A Burien family whose child was a wish recipient in 2007 will walk as a team as part of Make-A-Wish Alaska & Washington’s annual Walk for Wishes on Sept. 23.
“Cassidy and The Flatts” honors Cassidy Huff, who suffers from a rare genetic syndrome called Conradi-Hunermann and who got to meet the country band Rascal Flatts for her wish (read our coverage from 2009 here).
“Our Wish experience continues on to this day!” said Shannon Reynolds, Cassidy’s mom. “It was such an amazing experience from start to finish. It brought us closer together as a family. We reflect back on it often and smile and laugh. There are times in the hospital when Cassidy feels sad and all I have to do is play a Rascal Flatts song. It makes all of the appointments, treatments and surgery easier when we can look back on our Wish.”
She added that by walking her family can help “pay it forward” and ensure other critically-ill children can experience a wish.
Here’s more info on Cassidy’s condition from her blog:
Cassidy was born with a rare genetic condition called Conradi-Hunermann Syndrome. It affects her spine so she has scoliosis and kyphosis for which she has two VEPTR’s (titanium ribs) to help keep her spine straighter. She has limb length issues. Her right side is shorter and she wears foot on foot prosthesis. Her vision has now been corrected in her right eye. She had a very severe cataract in that eye that has now been replaced with a lens. We call it the bionic eye! She also has some patchy alopecia. Cassidy also has some hearing loss in her left ear. This has been corrected with a hearing aid that she wears most days. She has had 27 surgeries to date with more to come, usually one every six months. If you are interested in reading our journal on our other page please feel free to do so. You can find it at http://www.caringbridge.org/wa/cassidyhuff/
The community is invited to join the walk or contribute online at http://www.nwwishes.org/donate/walk12.asp.
Here are the details:
WHAT: 4th Annual Walk for Wishes. A family-friendly community event, 5K walk and fun run is enjoyable for all ages and will feature kid’s activities, refreshments and entertainment.
WHEN: Sunday, September 23, 1012. Check-in at 8:45am; walk at 9:00am.
WHERE: Marymoor Park | 6046 W. Lake Sammamish Pkwy NE | Redmond, WA 98052
INFO: Celebrating 26 years of granting wishes to children with life-threatening medical conditions, Make-A-Wish Alaska & Washington grants the wishes of children with life-threatening medical conditions to enrich the human experience with hope, strength and joy. This year, the local chapter will grant nearly 300 wishes. For more information about Make-A-Wish Alaska & Washington and how you can share the power of a wish® please call 1-800-304-9474, visit www.northwestwishes.org or connect with us at www.facebook.com/northwestwishes or on Twitter @MakeAWishAKWA.