Eyesight improving for Brian Aston, but a new diagnosis: MS; fundraiser May 3
by Mark Neuman
Readers will recall Brian Aston, a Friend of the Blog and area resident, who we have written about several times in the recent years.
Brian quite suddenly lost almost all of his vision about a decade ago at the age of 20.
The reason: A genetic disease called Leber’s Hereditary Optic Neuropathy.
And now, like bookends, a second diagnosis – Multiple Sclerosis. Here’s Brian talking about it in a recent video update:
The Highline High School graduate has been working hard to regain his eyesight, involving himself in a gene therapy study, eating healthfully and taking a vitamin called Idebenone.
“I’ve had considerable improvement in my sight in the recent year,” Brian told us today.
“I’ve had three MRI’s in the last two weeks. One on my brain, one on my spine and one with emphasis on my optic nerves,” Brian said. “They found white spots on my brain and spine.
“I had a spinal tap Tuesday,” he said.
His doctors called him yesterday (Thursday, April 18.)
“They told me I have Multiple Sclerosis,” Brian told us. “It’s been a really interesting month so far.
“MS is like blindness. It’s a disease,” Brian said. “The doctors are going to help me out with what they can. And I’m going to attack it in my own way, on my own front. It’s not going to hold me back.”
Brian says he has good feeling in his arms and legs, “but I do experience extreme fatigue and soreness in my body now and again.”
A fundraiser for Brian Aston, which had been scheduled prior to Thursday’s news, is set for Friday May 3, starting at 6 p.m. at Goodtime Ernie’s in south Burien.
Details are coming soon, but the event will likely involve music, a spaghetti feed and silent auction.
WHEN: Friday, May 3, 6 p.m.+
WHERE: Goodtime Ernie’s, located at 15747 Ambaum Blvd. SW, Burien; (206) 248-1670
INFO: For more information, visit Brian Aston’s website: www.TheGeneticHouse.com.